Greetings Internetlings! It has been a long time since my last blog post. The past 6 months have been particularly busy for me. I keep meaning to get over here and make a post, but I always seem to get sidetracked over here or there or someplace else.

A lot has happened over the past half year. I had to go home to the mid-west for 7 weeks to care for my mother after hip replacement surgery. Not long after I returned home, I had fly to the east coast to care for my dad for 5 weeks after it was discovered that he has non-invasive bladder cancer. Both parental units are doing well and I am confident that everything is going to be just skippy!

Recently, I have been on a doctor visit marathon. Taking care of my yearly examinations, finding a new primary and having tests performed; some completely medieval. In the medical community that call it a “Mammogram”. I call it legalized battery!  I was sore for 3 days afterward. About 3 weeks ago, I was in the ER in excruciating pain with what turned out to be a 4mm kidney stone. Holy smokes that was painful. I am no stranger to pain, but that was ridiculous and actually made me cry. It took a week to pass and I was never so glad to have something over in my life.

I had to go see a Urologist as the cat-scan found a nodual on one of my adrenal glands just over my left kidney. Turns out that it is completely benign! But, I am to take a 24 hour urine test to find out my risk level for the stones and hopefully, why it is that I am getting them. I still say it is the 6-MP. Tomorrow I have to back to the doctor that removed that huge cyst off of my left ovary. The cat-scan also revealed that both of my ovaries are very enlarged; the left one is not looking very well and is the largest of the two.

My fear is that they are full of cysts from the PCOS and I will be asked to have them removed. After everything that I have faced in the last 4 years that is the one thing that simply terrifies me. It is one thing knowing that your chances of ever having a child are small, but once they take my ovaries it’s over and I will never be a mother. How do you deal with that? I will, of course, but it makes me nauseous to think that way. So, for now, I am thinking positive while still listening to the voice in my head that is telling me to put on my big girl pants and be prepared just in case.

Lastly, (this is exhausting!) my gastro has been monitoring my liver function very closely since last August. Normal funtion is 40-45; mine was hanging around 60-63 and has recently shot of to 72. On the 22nd of  March, I am sceduled for a liver biopsy. Not fun, but it has to be done. I either have fatty liver, which is very common in the United States or I have Autoimmune Hepatitis due to my Crohn’s disease. I’m predicting fatty liver because it something that I can most likely correct. :) On a better note, my Crohn’s has suddenly decided to stabilize. What that really means is that blood tests, sans liver function, have stabilized to near normal levels. I still have the nausea, major fatigue and I am finding more and more foods bother me. However, I am happy and grateful with the stabilization.

In closing, I just want to remind everyone that none of us truly knows what is going on in the lives of others. What is important to me, may not be important to you because of all the things that you have going on. So, be kind to one another. Take a deep breath and know the moment will pass. Try to find something good in your life and share it with others. But, mostly, be tolerant. Temperance is a true virtue in this life. I for one wish to be remembered for the things I taught others and not the mistakes I made in my life.

 

{ Comments on this entry are closed }

Crohn’s Roulette: 6MP, Remicade, Humira

March 22, 2010

I had my surgery and all went well. (Except for the fact that I think I was given a bit too much Sandman Special. It took about 3 days for me to get the anesthetic out of my system. Oy vey.) Several biopsies were taken and sent off pathology.  The Friday after surgery I went [...]

Read the full article →

Healthy on the outside- suffering on the inside.

January 20, 2010

Ah, where to begin? I’ve been away for several months and avoiding my blogging duties, though it has not been far from my mind during this time. A lot of things have happened in a very short time. I’ve lost two really good people that I cared for… My friend Steve, you’ve read about him [...]

Read the full article →

Tea and Digestive Disease

September 4, 2009

(Trzewia_CzlowiekaBKKL, 1914) Digestive diseases affect 60 – 70 million people in the United States a year, according to estimates from the National Center for Health Statistics. People with Inflammatory Bowel Disease (Ulcerative Colitis and Crohn’s Disease) and Irritable Bowel Syndrome are constantly monitoring their digestive system, sometimes striking a precarious balance between western medicine, eastern medicine, [...]

Read the full article →

New Source of Information on Crohn’s Disease and Ulcerative Colitis Medications

August 13, 2009

Download this press release as an Adobe PDF document. NeedyMeds.org and the Crohn’s & Colitis Foundation of America announce a new source of information on medications used for Crohn’s disease and ulcerative colitis and the financial help available for those living with these diseases. (Vocus) August 13, 2009 — NeedyMeds, a national nonprofit, added a [...]

Read the full article →

What is the FDA thinking? If the Crohn’s does not kill us, the treatments will.

August 4, 2009

What the hell is a person suppose to do? I’ve been here before; wondering what the 6MP would do to me over time, as over time the dosage has risen from 50mg to 100mg. I’ve seen what medications can do to people over time. I have a couple of family members who are suffering the [...]

Read the full article →

FDA Orders Stronger Cancer Warnings for Enbrel, Humira, Remicade

August 4, 2009

Courtesy of the Associated Press The Food and Drug Administration has ordered Enbrel, Humira, Remicade and other drugs known as TNF blockers to carry stronger warnings about the risks of cancer in children who take the drugs for treating juvenile rheumatoid arthritis, Crohn’s disease, and other inflammatory diseases. TNF blockers are drugs that work to [...]

Read the full article →